STORIES OF STOPPING CLUSTER SEIZURES
Cathy and Zak:
Zak started the day with a seizure. We used the rectal valium and held it to just one. We've followed up with the oral valium through the day and if I hadn't seen him have the grand mal seizure this morning I would not have known anything was wrong with him.
The good news if I can give Zak the correct dose of rectal valium right away and follow up with the oral valium, we are able to stop clusters, the seizures are milder and he bounces back very quickly after the seizures.
Debbie and Baxter
First, I have to say that just getting the liquid valium was an experience in itself. My vet and I had many talks about it and he finally agreed to write me a prescription. I found that I would be able to have it filled at a local hospital pharmacy with no problem. RIGHT! I went to the pharmacy and the pharmacist was very nice but said he didn't carry the valium the was the prescription was written and that he would need to call my vet to get permission to change it. I certainly agreed, but told him that my vet did not work on Fridays (bad move on my part to try to have this filled on my vet's day off). Of course the other vets wouldn't even touch this one so the pharmacist said I would have to wait until he could talk to my vet. He felt so bad that he agreed to fill a syringe for me to take with me because he didn't want my dog to be without his medicine. I thanked him but told him I would wait. On Tuesday, I was finally able to get the valium and 3 syringes for only $20. A bargain, I thought. The pharmacists last words to me were "I hope you never have to use this" What a nice man!
So several weeks went by and I was so hoping I would never need the valium but alas it was not to be. On a Wednesday night, right about the time I had to leave for obedience class, down Baxter went. I had read the protocol many times and talked to Joanne and Judi about the procedure. I kept a cool head and remember thinking to myself that this was for my boy and I couldn't mess this up. WELL...just like a pro, I filled the syringe, removed the needle, dipped the Tom Cat catheter in Vaseline, attached the syringe to it and inserted it with no problem as Baxter is kind enough to hold his tail up when he has a seizure. I thought it would be easier to insert the catheter with the syringe already attached. Boy was I wrong! Doing it this way does not allow any gas to escape, should there be a need and that causes resistance. I started to depress the plunger and I felt a great deal of resistance and , not realizing that you must hold the catheter...Splash!!! The catheter flew off the syringe and approximately 1.4 cc's of oily valium sprayed right into my face, all over the floor and down my shirt. A few choice words flew out of my mouth and I jumped to refill the syringe. This time it went in smoothly and within 20 minutes my boy was back to normal.
This is amazing since, without the valium his cluster seizures will go on for almost 2 hours. This was followed by oral valium and Rescue Remedy. I also faired pretty well. I washed off my face but still felt some effects after about 1/2 hour. Needless to say, obedience class went very well that night as I was VERY relaxed.
My advise is to keep calm and things will go fine.
Bonnie and Molly
About a year ago Molly and I were sitting in the vets parking lot with me crying my heart out because I thought I would have to help Molly out of this world of clusters. ERs every few nights. She was taking 480 mg of Pb with no relief at all. I asked the vet to try another drug and he told me that there was no magic cure. At this time I had no epi list to go to. I knew no one else with this problem. I wanted a computer so I could research this. I hadn't ever used one before and I couldn't even type. Got my computer in September and went to work.
Then the greatest thing that ever happened, I heard from a real honest to God (earth angel), Joanne Carson who sent me much information and the valium protocol. I changed vets, put Molly on Kbr and I got a supply of liquid and oral valium. Molly never had a cluster again!! One single seizure every month or so I can handle with the valium protocol. But it gets even better. Joanne advised me to check Molly for hypothyroidism. It was abnormal. Molly started Synthroid and the seizures got further and further apart. Molly and I can handle this knowing we are prepared now. Every time I look at this sweet little girl, feeling sad that she went through all of this, I think of Joanne and the rest of you and thank you for your unending support. Molly is 4 years old now and I hug and kiss her and hold her tight, much as she will allow. The valium protocol has saved her life.
Pam and Sidney
I'm thrilled to be able to share with you something miraculous that has stopped Sidney from having cluster seizures. Rectal and oral valium (diazepam).
Sidney has had a history of cluster seizures. Through his entire life he never has had just one seizure. His seizures always come in clusters. He averages 5 cluster seizures per episode within a very short period of time. He's had 12 seizures in a 7 hour period. His seizures average every 16 days.
Sidney had one seizure at 3:00AM Thursday. He did not have another seizure because we used rectal and oral valium (diazepam) according to the recommendations of Dr. Thomas, Dr. Podell and the valium Protocol. My vet wasn't sure that the application of rectal and oral valium would stop Sidney's clusters because they came so fast. But gave me both based on the dosage guidelines in the valium protocol.
The secret here was the combination of both rectal and oral valium. The rectal valium relaxed Sidney after the trauma of the seizure and he went to sleep. No pacing, no post-ictal. The oral valium he had every 3 hours kept the anti-seizure sedation at a high enough level to stop any further seizures.
Steve and Norton
Norton's seizure free streak ended Tuesday morning at 10 weeks. For those of you not familiar with his history, Norton goes anywhere from 4 to 12 weeks between seizures, and almost always clusters. The time before last he had 23 seizures over the course of a weekend.
Tuesday, as well as 10 weeks ago, I used the valium protocol, both liquid and oral valium. Both times Norton had just one seizure and that was it. I have a very understanding vet, whose main objective is Norton's well being. When he read the literature I provided him, he had no problem giving me the liquid and oral valium. With Joanne's help I have quickly mastered the procedure. It may be luck or it may be coincidence, but I am of the belief that the valium protocol is solely responsible for stopping Norton from clustering. I urge anyone with a clustering pup to look into it.